Declaration of Helsinki


This post is part of 'Domain | General' series

The Declaration of Helsinki is a statement of ethical principles established by the World Medical Association (WMA) that provides guidance to physicians and other participants in medical research involving human subjects. It is widely regarded as the cornerstone document in the field of research ethics and serves as the basis for laws, regulations, and ethical guidelines worldwide.

History

The Declaration of Helsinki was first adopted by the WMA in 1964, following a series of scandals involving unethical medical research practices, such as the Tuskegee syphilis study in the United States, which involved withholding treatment from African American men with syphilis. The Declaration was intended to provide a set of principles that would guide medical researchers in their treatment of human subjects and promote ethical practices in medical research.

Over the years, the Declaration has been revised and updated several times to reflect advances in medical research and changes in the ethical and legal landscape. The most recent revision, known as the 2013 version, provides guidelines for conducting medical research in a manner that protects the rights and welfare of human subjects.

Principles

The Declaration of Helsinki outlines a set of principles for medical research involving human subjects. These principles are based on the idea that the well-being of the individual research participant should take precedence over the interests of science and society as a whole. Some of the key principles of the Declaration include:

  1. Respect for individuals: Researchers should respect the dignity, privacy, and autonomy of research participants and ensure that they are fully informed about the nature and purpose of the research.

  2. Beneficence: Research should be designed and carried out in a manner that maximizes the benefits to individuals and society while minimizing the risks and harms.

  3. Non-maleficence: Researchers should ensure that research does not cause harm or injury to research participants.

  4. Justice: Research should be conducted in a fair and equitable manner, with a focus on the needs and interests of vulnerable populations.

  5. Scientific rigor: Research should be conducted in a scientifically rigorous manner, with appropriate attention to design, methodology, and analysis.

Application

The Declaration of Helsinki is not a legal document, but it has been influential in shaping laws, regulations, and ethical guidelines related to medical research. Many countries have adopted the Declaration as a basis for their own guidelines and regulations related to medical research, and it is widely recognized as a standard of ethical practice.

In addition to its role in shaping ethical standards, the Declaration of Helsinki is also used as a basis for reviewing and approving research protocols by ethics committees and regulatory agencies around the world. Researchers who wish to conduct medical research involving human subjects must demonstrate that their research protocols are consistent with the principles outlined in the Declaration.

Conclusion

The Declaration of Helsinki provides a set of ethical principles that guide medical research involving human subjects. It is widely regarded as a cornerstone document in the field of research ethics and has played a key role in shaping laws, regulations, and ethical guidelines related to medical research. By promoting ethical practices in medical research, the Declaration has helped to ensure that the rights and welfare of human subjects are protected and that medical research is conducted in a manner that promotes the well-being of individuals and society as a whole.





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Domain


General
What is MedDRA
What is WHO-DD
What is ATC classification of Drugs
Tables vs Listings in Clinical Trial Analysis
Analysis Sets in Clinical Trial Data Analysis
Validation of TFLs in Clinical Trials
Vital Signs in Clinical Trials
ECG in clinical trials
Solid tumors vs other cancers
What is 21 CFR Part 11?
Declaration of Helsinki
Importance of Harmonization (ICH)
The Drug development process
Overview of clinical trial process
What is a clinical trial?
What is Pinnacle 21?
Who conducts clinical trials?
Why are clinical trials conducted?
What are the phases of clinical trials?
Why are oncology clinical trials considered critical?
What is a clinical trial protocol?
Case Report Form (CRF)
Database annotated CRF
What is a clinical trial registry?
Factors affecting drug metabolism and activity
Prior and Concomitant medications
Inclusion/Exclusion Criteria in a clinical trial
What happens after a clinical trial is completed?
The Investigational New Drug Process
Preclinical Research
Drug discovery
FDA Drug Review
What is the importance of baseline characteristics in a clinical trial?
Why do we need CDISC standards?
What is a clinical development plan?
What is a clinical study report?
"Exploratory study" vs "Confirmatory study"
What is ICH?
Clinical trial registries
Efficacy data vs Safety data
What is clinical data management?
Clinical SAS Programmer
Statistical Analysis Plan
The 27 System Ogran classes (MedDRA)
What is RECIST 1.1?

Trial design aspects
What is a crossover clinical trial?
What is blinding in clinical trials?
What is an open-label clinical trial?
What is randomization in clinical trials?

Terminology
What is a cohort?

SAS


Definitions
What is a computer?
What happens when we execute a SAS program?
What is software?
What is SAS?
What is data?
What is data entry?
What is data retrieval?
What is data management?
What is "Report"?
What is statistics?
What is Statistical Analysis?
How do we use SAS?
What kind of questions can SAS help us answer?
How do we provide instructions to SAS?
What is a SAS program?
What does a SAS program contain?

General
Attributes of a SAS dataset
Rules for SAS dataset names
Rules for SAS variable names
Rules for SAS library names
Rules for character SAS format names
Reserved SAS dataset names
Rules for numeric SAS format names
What can SAS dataset options do?
Attributes of a SAS variable
Automatic conversion of data types in SAS
How does SAS expect our data to be organized?
Introduction to SAS interface
By groups in SAS

Informats
Rules for character SAS informat names

Proc freq
Count the number of times a particular value occurred in a variable of a dataset

Proc contents
Check the list of variables in a SAS dataset

Proc datasets
Delete all sas datasets from a library
Delete specific sas datasets from a library
Save specific sas datasets (and delete others) of a library
Rename SAS datasets using proc datasets change statement

Log issues
WARNING: No matching members in directory.

One-line definitions
What is a SAS library?
What is a libref?
What is an input statement?
What is infile statement?
What is set statement?
What is length statement?

SDTM


General
How to derive baseline flag in SDTM
How to create SEQ variable in SDTM
New domains in SDTM IG 3.3
What is a codelist?
How to derive study day variable in SDTM
What is SDTM?
Why do we need SDTM?
What is SDTM annotated Case Report Form (acrf.pdf)
How to convert original results to standard results using conversion factors

Demographics
What information does SDTM.DM (Demographics) contain?

Adverse Events
What is causality assessment?
What information does SDTM.AE (Adverse Events) contain?

Disposition
What information does SDTM.DS (Disposition) contain?

Concomitant Medications
What information does SDTM.CM (Concomitant/Prior Medications) contain?

Procedures
What information does SDTM.PR (Procedures) contain?

ADaM


General
What is ADaM?

ADSL
What is ADSL as per ADaM standard?

BDS
What is BDS as per ADaM standard?

Statistics


General
What is correlation?
Descriptive statistics
Inferential statistics
ANCOVA - Basic example
ANOVA - Basic example
What is Binomial test
What is chi-square test
What is 95% confidence interval
Measurements of central tendency
Measurements of spread
P-value
Alpha (Type I) error
Beta (Type II) error
Repeated measures analysis
ttest - introduction
Multiple imputation
What is Standard error
What is Fishers exact test
What is Least Squares Means

General

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